Two sisters’ fight to survive ultra-rare condition which killed elder sibling and affects just 200 people worldwide

Two sisters who “wonder how long they will be alive” have told of their “truly devastating” struggle living with a medical condition so rare only 200 people have been diagnosed worldwide – and which has already claimed the life of their elder sibling.

https://news.sky.com/story/two-sisters-fight-to-survive-ultra-rare-condition-which-killed-elder-sibling-and-affects-just-200-people-worldwide-12614609